This month, Dysautonomia International would like to put the spotlight on the Volunteer on Amy Kohut who has volunteered for Dysautonomia International since our launch in 2012 and recently joined our board of directors.
Amy fell ill during her freshman year in law school and ended up being diagnosed with POTS from Dr. Thomas Ahern of Scripps Health in San Diego in 2008. Amy says, “He saved my life. I had an “old-fashioned” tilt table test and let's just say it wasn't pretty. Amy started the California POTSies Facebook group in 2009 to see if anyone else had this syndrome, and of course, she found out that she wasn't the only one with POTS.
Amy "met" Lauren Stiles (by phone) in 2012 while studying for the California Bar Exam. “We talked on the phone for hours about our respective experiences in getting proper diagnoses, law school and life. We both volunteered to do a radio interview about dysautonomia at the start of Lauren's nonprofit vision, but there were technical issues, and Lauren ended up being left out of the interview, for so to speak. I had to steal it.
Following Amy's thrilling radio performance, she was named the first chair of Dysautonomia International's Patient Advisory Board and represented the organization at the very first medical conference the organization attended, the 10th International Catecholamine Symposium , in 2012. Amy was invited to give a talk before a group of the world's leading independent experts. “I didn't know what a catecholamine was at the time, but I knew it could be measured and that catecholamine abnormalities were correlated with different forms of dysautonomia. Everything Amy said worked, as several dysautonomia experts in the audience joined our medical advisory board after this conference. “We were on the move with a new non-profit organization and a growing community of patients and clinics.”
Dysautonomia International even got Amy interested in football. “I never understood the feeling of joy at the end of a Super Bowl before the Eagles won in February 2018. My husband's family supported the Eagles because it's their team. I was cheering for them because then QB Nick Foles' wife, Tori Foles, had fought POTS and was helping Dysautonomia International raise awareness of the disease in the international community. I was so excited when they won this game I had to take an extra beta blocker! "
We asked Amy what she would like to share with the dysautonomia community, and she had a great response that will resonate with many of us right now. “We are currently living in a time of uncertainty with a global pandemic that does not appear to discriminate between the sick and the healthy, the rich and the poor, or the old and the young. As long as the dysautonomia community remains united, as we have done since the early days of social media, we can support each other in weathering this storm. As always, our patient population trusts scientists, researchers, clinicians and the entire volunteer community. Despite these difficult times, we will continue to raise awareness of all forms of dysautonomia and all known aetiologies, to fund research so that dysautonomia patients do not suffer the unbearable delays in diagnosis and treatment of the 1990s and early 1980s. 2000, and to educate the next generation of healthcare providers in autonomic neurology. While we may be in a waiting situation as the world comes together to prevent, test, treat, and care for COVID-19 patients and providers, those with dysautonomia know better than anyone how to cope. uncertainty. We are going to experience this together, as we have been doing for ten years as a united and well-informed patient community.
Thank you Amy for everything you have done and everything you continue to do!through
Nowadays, many people are choosing to wear compression stockings. They are affordable, easy to access and help to fight off unpleasant symptoms of illness. These specialized elastic socks are designed to offer comfort to the wearer by applying pressure to the legs, allowing better blood circulation throughout the body.
However, those who wear compression stockings know that getting them on can be challenging. The good news is, there are easier ways to don your stockings and move forward with your day. ComproGear has put together a gamme of tips and tricks to help you simplify your compression sock routine.
Before we go over how to put compression socks on, we’ll take a look at the basics : What are compression socks ? How do they work ? And what do compression hose have to offer you ?
Compression stockings are a unique type of therapeutic wear that helps to improve blood circulation in the body. These socks and stockings are often used to reduce pain or swelling in the legs.
Compression stockings can also lower your risk of Deep Vein Thrombosis ( DVT ) by exerting pressure on your legs as you wear them. This gentle pressure assists with blood flow from the legs and back to the heart, preventing the clotting and pooling of blood.
You will find compression stockings in a range of sizes and pressure levels. When de course for your compression socks, note that mmHg is used for denoting the pressure exerted by compression stockings. A higher mmHg indicates a higher amount of pressure being applied to the legs by the compression sock. For example, 30mmHg is a higher pressure outil than 15mmHg.
For those who do not have a medical diagnosis, using compression socks with a mild pressure rating will suffice. A low pressure rating can help you deal with tired legs and mild swelling.
A compression sock should offer a “snug” fit but shouldn’t be excessively tight. Before you make a purchase, take a look over the sizing chart to get an idea about which size would fit you best.
Medical grade compression socks are generally tighter in the ankle portion of the sock and gradually become less tight towards the knee. This type of compression is called graduated compression. TED socks and many varieties of compression garments use graduated compression.
You can purchase compression socks from medical equipment stores or ComproGear. If you need compression hose for medical reasons, your doctor will prescribe the right compression according to your needs and will help you order the convenable size. Prices will vary according to the type of compression sock and its brand.
Those who suffer from medical conditions related to poor circulation can benefit from wearing compression stockings : Anyone recovering from varicose vein surgery. Athletes who are recovering from an injury or who are training extensively. Those who are at risk of developing Deep Vein Thrombosis ( DVT ), varicose veins, edema or leg ulcers. Those who spend a lot of time travelling or sitting such as pilots, frequent fliers, truck drivers, etc.
It’s a great idea to put your compression hosiery on first thing in the morning before any swelling occurs from the day’s activities. This will allow the stockings to slide on with greater ease. Alternatively, you may lay down and rest your legs on an elevated pillow for about 15 minutes to reduce swelling before donning your socks.
Your legs should also be clean and dry. Dry off completely after bathing and if it is a particularly humid day, sprinkling talc or cornstarch across the legs can help the fabric of the socks slide on smoothly.
to pull on your compression stockings with ease, place just your toes into the stocking’s toe area. The rest of the sock will be bunched up around the toes as you do this. Gradually unravel the sock upwards towards your knee. Do not crouch on the floor or bend over while standing, as this will make it difficult to sweat your compression hose on. It is best to sit in a peau while donning your socks.
Wrinkled stockings are difficult to wear. Creases in the material can apply abusive pressure to the skin beneath them, causing discomfort or cutting off circulation. Be sure to smooth out any creases in the fabric once your socks are on. This will ensure you’re getting the optimum pressure outil from your stockings. Do not fold over the top of your compression hose as this can interrupt blood flow.
If you wear open-toe compression stockings then this trick is for you. Slip a plastic bag over your foot and heel. The plastic bag’s slippery surface will help your compression hose slip onto your leg with ease. Once your sock or stocking is on, carefully sweat out the loose plastic bag through the open-toe of your stocking. You can also try using a silk foot slip to help you put on your compression socks. It works in much the same way as the plastic bag trick. All you need to do is to place your foot into the silk foot slip then sweat your pressure sock over it and onto your leg, just as you would with a regular sock.
An effective method for donning compression stockings without the hassle is to use talcum powder or cornstarch. Sprinkle some across your ankles and legs before pulling your socks on. These silky powders allow close-fitting compression garments to slide over the skin easily. Talcum powder can also help absorb excess moisture on the skin.
Applying lotion and creams to the legs will make it difficult to put your stockings on. Moisturized skin tends to stick to or grab the fabric of the socks as you attempt to sweat them on. One solution to this problem is to apply lotion before going to bed rather than in the morning. This allows enough time for the cream to absorb into your skin, leaving it smooth enough in the morning for the compression socks to slide on easily.
There are several donning tools available commercially that can help if you’re struggling to get your compression stockings on. You can purchase these tools at medical equipment or online stores. The prices will vary according to the brand. Popular donning devices include Medi Butler, Juzo Slippie Gator and Sigvaris Doff n’ Donner. These tools are ideal for elderly people or anyone with a mobility venant that has difficulty putting on compression stockings.
Donning gloves are a great tool to help you firmly grasp your stockings without tearing them. It can be quite difficult to grab and sweat the stocking fabric with your bare hands. This is where gloves can come to the rescue. Various brands manufacture gloves that can be worn while donning compression stockings. These gloves also protect the stocking fabric, especially if you are concerned about your nails tearing the hosiery.